Before that fateful day of March 3, 2016, Andrew and I had never heard the words “congenital diaphragmatic hernia”. As we researched our daughter’s condition, we were shocked to learn that CDH is no less common than cystic fibrosis or spina bifida, and yet these conditions are much more well known than CDH. The cause of CDH is unknown. By sharing Willow’s story, we hope to shed light on this devastating condition that forever changed our world.
To learn more about CDH, please refer to the following sources:
- CHERUBS: The largest CDH non-profit organization in the world, CHERUBS is dedicated to raising awareness, funding research efforts, and supporting families impacted by CDH.
- Center for Fetal Diagnosis and Treatment: The Children's Hospital of Philadelphia is an excellent resource for information regarding CDH diagnosis and treatment.
- DHREAMS: Funded by the NIH, the DHREAMS research team is seeking greater genetic understanding of CDH.